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3NDWG Webinar: Support & Your Rights - Shared screen with speaker view
Duncan Jones
38:40
Happy New Year to you all. Duncan (Alzheimer’s Society Trustee)
James Erskine
39:03
You can catch-up on webinars here: www.3ndwg.org/category/events/
Fran Hamilton
39:25
Hello, lovely to be joining you for the first webinar of the year. Best wishes, Fran Hamilton, Occupational Therapist, Brighton
Sue Phelps
41:41
Bore da from Wales. Great to be joining you all at the first webinar for 2021!
Daisy Cole
42:39
Bore da Sue and everyone :-)
Christine Maddocks
43:07
Good morning everyone. Thankyou for joining us today
masood qureshi
43:09
Good morninglovely to be amongst everyone of 3 NDWG :-)MAQ from Stoke on Trent
Bethan Morris
43:41
Bore Da from Wales Bethan tide
Tracy Weigh
45:13
Morning, lovely to be able to join you, Tracy Age UK Cheshire, dementia support worker
Chris Roberts
54:47
Great presentation! lots of information πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½
Sue Phelps
55:24
Thanks Miriam. Great work!
Fran Hamilton
55:55
Thank you for a very informative presentation Miriam
Sue Phelps
56:15
Also Miriam, a great surname - it was my maiden name! :)
Alison Johnstone
56:20
Hello everyone, great presentation!
Julie Hayden
58:46
Great presentation Miriam
Julie Hayden
59:43
CRPD open to loose interpretations, so open to be ignored or abused
Chris Roberts
01:01:13
https://www.mentalhealth.org.uk/sites/default/files/dementia-rights-policy-discussion.pdf 2015
Daisy Cole
01:03:59
Isn't that why we have the Mental Capacity Act?
Chris Roberts
01:05:12
The link above may be of interest This report was written by: GrΓ‘inne McGettrick, Policy & Research Manager at Acquired Brain Injury Ireland (formerly Policy & Research Manager at the Alzheimer Society of Ireland), with the assistance of Toby Williamson, Head of Development & Later Life at the Mental Health Foundation. The Mental Health Foundation would like to express its thanks to the following for their invaluable assistance in shaping this report: β€’ GrΓ‘inne McGettrick for drafting (and her patience in redrafting) the report and Acquired Brain Injury Ireland for their support; β€’ Members of the expert advisory group: Peter Ashley, Professor Peter Bartlett, Sam Cox, Iris Elliott, Jayne Goodrick, Philly Hare, Lynda Hughes, Steve Milton, Camilla Parker, Chris Roberts; β€’ Steve Milton from iD for helping to inspire the project in the first place, for supporting the involvement of people with dementia, and for producing the key points summary of this paper; β€’ All the speakers and participants at the roundtable ev
Daisy Cole
01:05:39
Thanks Chris
Chris Roberts
01:05:58
πŸ’•
Chris Roberts
01:07:00
https://www.dementiavoices.org.uk/wp-content/uploads/2016/11/Our-dementia-Our-rights-booklet.pdf
Chris Maddocks
01:07:21
Chris Roberts - I can't see the link to your comment. Could you include it again please?
Chris Roberts
01:08:10
Well explained as usual Toby, good to see you πŸ‘πŸ½
Fran Hamilton
01:08:55
Thank you Toby
Daisy Cole
01:09:35
Ye good question how do we get duty bearers to do their job!
Toby Williamson
01:11:58
Thanks for all your comments. Here's the link to the free webinar: https://us02web.zoom.us/webinar/register/WN_BdajGFhsSYm_PFmqqt9fhw
Chris Roberts
01:12:59
thank you very much Toby πŸ™πŸ½
Chris Roberts
01:13:51
The Dementia Statements We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it. We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness. We have the right to an early and accurate diagnosis, and to receive evidence-based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live. We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future. We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to ta
Chris Roberts
01:15:21
cure and care for dementia and be supported to take part.
Chris Roberts
01:17:12
FYI
Julie Hayden
01:17:38
Well said Keith. We so desperately need to move on to putting these statements under a legal lens
Chris Roberts
01:18:16
it was Jayne that pressed for the change from β€˜I’ to β€˜We’
Daisy Cole
01:18:47
Thank you Keith, that was great
Clarissa Manuel-Jones
01:19:06
Very powerful poem Keith
Chris Roberts
01:19:10
and myself that put in the statement have the right’ 😎
Julie Hayden
01:19:14
Wonderful. Please share the poem on social media Keith
Sue Phelps
01:19:22
Wow Keith. Let's aim for the Moon as a united force. So powerful. Thank you :)
Fran Hamilton
01:19:39
Thank you Keith for remining us of these essential statements - and yes these need to be enshrined in law. Powerful poem too.
Chris Roberts
01:19:53
great poem Kieth! πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½
Tracy Weigh
01:20:16
Lovely poem - thank you Keith
Chris Roberts
01:23:15
great advice Nigel
masood qureshi
01:24:24
Brilllllllllllllll Nigel
Leila Costa Dobes Chillingirian
01:25:26
i can't find the dementia statement in Alzheimer's society website
Toby Williamson
01:26:02
Maybe we need another 'We statement' about Covid and dementia... Here's a link to the guidance on looking at the 'We statements' (that Keith read out) through a legal lens: https://nationaldementiaaction.org.uk/wp-content/uploads/2020/02/NDAA_Dementia_Statements_2020_final_LR.pdf
James Erskine
01:26:02
https://www.alzheimers.org.uk/about-us/policy-and-influencing/what-we-think/dementia-statements-and-rights
Keith Oliver
01:26:05
Go to the NDAA website for the statements
Leila Costa Dobes Chillingirian
01:26:31
thanks
Catrin Hedd Jones
01:26:52
https://www.alzheimers.org.uk/about-us/policy-and-influencing/what-we-think/dementia-statements-and-rights
Keith Oliver
01:27:11
Thank you everyone for your kind words and comments. I did think the poem was unfinished, I read it to Rosemary at 10:30 and she said it was and I should use it - I'm pleased after your feedback that I did.
Natalie Elliott
01:28:32
I’m so glad you shared it Keith. It would be a wonderful message to share with others eg on twitter
Julie Hayden
01:30:05
Keith, poem perfect. Remember Picasso!
Keith Oliver
01:30:12
I recommend to you all the poetry book Time and Place for great examples from 9 people with dementia and published during covid. Available from Amazon for Β£4.99. A great read and bargain!!
Fran Hamilton
01:31:32
Thank you Nigel for sharing your expertise and encouragement.
Chris Roberts
01:32:09
excellent information Nigel! very important
Julie Hayden
01:32:34
Brilliant Nigel
Keith Oliver
01:33:05
Great stuff Nigel
Julie Hayden
01:33:39
I am alone and it's difficult to access a supporter
Julie Hayden
01:34:46
I have had them move it to a downstairs room
Chris Roberts
01:36:02
After summarising the evidence, a Drafting Event was held, attended by nine people with dementia (three of whom were accompanied by their carers) and three former carers. Members of the group produced draft statements based on the five themes. After this, there was a Consensus Event, where the final set of statements – the β€˜Dementia Statements’ were agreed. This was attended by people with dementia and carers (some of whom were also at the Drafting Day) as well as representatives of DAA organisations. where only minor changes were made to the original drafts
Fran Hamilton
01:36:12
Thanks Chris for great chairing of this really informative session.
Julie Hayden
01:36:28
Thanks Chris x
Chris Roberts
01:36:30
well done to all πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½
Natalie Elliott
01:36:39
Thank you. Really excellent webinar as always.
Catherine Bishop
01:36:42
very informative, thanks everyone
James Erskine
01:36:43
3ndwg@alzheimers.org.uk
James Erskine
01:36:53
www.3ndwg.org/membership/
Tracy Weigh
01:37:01
Thank you for the presentations and all the valid information given today. Thank you Chris excellent webinar
James Erskine
01:37:09
www.3ndwg.org
Daisy Cole
01:37:21
Thank you all for today's webinar.
Alison Locke
01:37:36
Many thanks everyone
Sue Phelps
01:37:39
Take care all and farewell.
Chris Roberts
01:38:18
πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½