Happy New Year to you all. Duncan (Alzheimer’s Society Trustee)
You can catch-up on webinars here: www.3ndwg.org/category/events/
Hello, lovely to be joining you for the first webinar of the year. Best wishes, Fran Hamilton, Occupational Therapist, Brighton
Bore da from Wales. Great to be joining you all at the first webinar for 2021!
Bore da Sue and everyone :-)
Good morning everyone. Thankyou for joining us today
Good morninglovely to be amongst everyone of 3 NDWG :-)MAQ from Stoke on Trent
Bore Da from Wales Bethan tide
Morning, lovely to be able to join you, Tracy Age UK Cheshire, dementia support worker
Great presentation! lots of information 👏🏽👏🏽👏🏽
Thanks Miriam. Great work!
Thank you for a very informative presentation Miriam
Also Miriam, a great surname - it was my maiden name! :)
Hello everyone, great presentation!
Great presentation Miriam
CRPD open to loose interpretations, so open to be ignored or abused
Isn't that why we have the Mental Capacity Act?
The link above may be of interest This report was written by: Gráinne McGettrick, Policy & Research Manager at Acquired Brain Injury Ireland (formerly Policy & Research Manager at the Alzheimer Society of Ireland), with the assistance of Toby Williamson, Head of Development & Later Life at the Mental Health Foundation. The Mental Health Foundation would like to express its thanks to the following for their invaluable assistance in shaping this report: • Gráinne McGettrick for drafting (and her patience in redrafting) the report and Acquired Brain Injury Ireland for their support; • Members of the expert advisory group: Peter Ashley, Professor Peter Bartlett, Sam Cox, Iris Elliott, Jayne Goodrick, Philly Hare, Lynda Hughes, Steve Milton, Camilla Parker, Chris Roberts; • Steve Milton from iD for helping to inspire the project in the first place, for supporting the involvement of people with dementia, and for producing the key points summary of this paper; • All the speakers and participants at the roundtable ev
Chris Roberts - I can't see the link to your comment. Could you include it again please?
Well explained as usual Toby, good to see you 👍🏽
Thank you Toby
Ye good question how do we get duty bearers to do their job!
Thanks for all your comments. Here's the link to the free webinar: https://us02web.zoom.us/webinar/register/WN_BdajGFhsSYm_PFmqqt9fhw
thank you very much Toby 🙏🏽
The Dementia Statements We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it. We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness. We have the right to an early and accurate diagnosis, and to receive evidence-based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live. We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future. We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to ta
cure and care for dementia and be supported to take part.
Well said Keith. We so desperately need to move on to putting these statements under a legal lens
it was Jayne that pressed for the change from ‘I’ to ‘We’
Thank you Keith, that was great
Very powerful poem Keith
and myself that put in the statement have the right’ 😎
Wonderful. Please share the poem on social media Keith
Wow Keith. Let's aim for the Moon as a united force. So powerful. Thank you :)
Thank you Keith for remining us of these essential statements - and yes these need to be enshrined in law. Powerful poem too.
great poem Kieth! 👏🏽👏🏽👏🏽👏🏽👏🏽
Lovely poem - thank you Keith
great advice Nigel
Leila Costa Dobes Chillingirian
i can't find the dementia statement in Alzheimer's society website
Maybe we need another 'We statement' about Covid and dementia... Here's a link to the guidance on looking at the 'We statements' (that Keith read out) through a legal lens: https://nationaldementiaaction.org.uk/wp-content/uploads/2020/02/NDAA_Dementia_Statements_2020_final_LR.pdf
Go to the NDAA website for the statements
Leila Costa Dobes Chillingirian
Catrin Hedd Jones
Thank you everyone for your kind words and comments. I did think the poem was unfinished, I read it to Rosemary at 10:30 and she said it was and I should use it - I'm pleased after your feedback that I did.
I’m so glad you shared it Keith. It would be a wonderful message to share with others eg on twitter
Keith, poem perfect. Remember Picasso!
I recommend to you all the poetry book Time and Place for great examples from 9 people with dementia and published during covid. Available from Amazon for £4.99. A great read and bargain!!
Thank you Nigel for sharing your expertise and encouragement.
excellent information Nigel! very important
Great stuff Nigel
I am alone and it's difficult to access a supporter
I have had them move it to a downstairs room
After summarising the evidence, a Drafting Event was held, attended by nine people with dementia (three of whom were accompanied by their carers) and three former carers. Members of the group produced draft statements based on the five themes. After this, there was a Consensus Event, where the final set of statements – the ‘Dementia Statements’ were agreed. This was attended by people with dementia and carers (some of whom were also at the Drafting Day) as well as representatives of DAA organisations. where only minor changes were made to the original drafts
Thanks Chris for great chairing of this really informative session.
Thanks Chris x
well done to all 👏🏽👏🏽👏🏽👏🏽👏🏽👏🏽
Thank you. Really excellent webinar as always.
very informative, thanks everyone
Thank you for the presentations and all the valid information given today. Thank you Chris excellent webinar
Thank you all for today's webinar.
Many thanks everyone
Take care all and farewell.