Zoom Logo

3NDWG: Dementia Care & Cultural Sensitivity - Shared screen with speaker view
Nigel
35:35
is there anyone who would like to join the panel ?
Tim Hough
38:39
can you see me
Valerie Cadmore
38:56
No
Versha Sood
41:46
Agree! The key to inclusion and diversity is awareness of different cultures :)
Tanya Williams
42:44
Really interesting about the term 'carer'. It's quite loaded for all people for example a transition from 'husband' to 'carer' is hurtful but service use the jargon a lot.
Zoe Harris
43:21
We're very keen to ensure that the Mycarematters profile and the My Future Care Handbook and Buddy Service are valid and relevant to all communities. Will you be providing contact details for Maq and Morcea so we can continue the conversation after today?
Holly Marland
43:29
Yes Versha, awareness of and genuine excitement and interest and curiousity in different cultures
Sue Moorchild
44:04
yes I agree. suddenly your identity and role change.
Louise Bates
44:35
Question: At Alzheimer's Society, through Dementia Friends we are working with volunteers nationally to educate communities and raise awareness through free information sessions. What do you think is the best way to introduce these sessions to minority communities? How can volunteers most effectively and credibly get their foot in the door?
Valerie Cadmore
45:19
Brilliant question
Tanya Williams
46:07
@MAQ exactly I agree. People associate dementia with more advanced stages, high dependency etc, not the preceding possible years when people can living perfectly well with support before then.
Louise Bates
46:20
I would Cheryl, but I am full of cold and can't really speak at the moment! Apologies!
Sue Moorchild
50:02
yes I agree information needs to be le
Tim Hough
50:12
yesterday I was almost scamed and lost everthing
Sue Moorchild
50:21
more user friendly
Astrid Stubbs
51:10
In West Sussex a bilingual dementia worker is in the process of being recruited to hopefully start work next April which will be fantastic :)
Versha Sood
51:26
I have been working with ethnic minorities being part of their community groups and getting to know them. I have had the interpreter for some sessions and was surprised to see the number of people with the diagnosis supported by their families without any formal training. The families came forward discreetly.
Versha Sood
52:24
That's what happened after the trust was built and people could relate to the information. For me as a dementia friend information session , this was enlightening.
Zoe Harris
52:36
Which language(s) does the dementia worker speak Astrid?
Lindsey Ambrose
52:55
Well done Morcea! I remember you asking for more dementia leaflets for the churches because of that initial interest generated :)
Astrid Stubbs
53:23
not sure yet - will be an option from a number including Urdu and Gujarati
Holly Marland
54:04
The Reimagining Dementia Coalition has over 600 members from 26 different countries, all working hard to rewrite the tragedy narrative around dementia. Emphasising quality of life and finding joy. https://www.facebook.com/reimaginingdementia/
Tim Wilkins
55:52
Great to meet you all on the panel today and what an enjoyable and informative conversation. Does anyone joining the meeting today know if a specific Alzheimer's Society CrISP course has been delivered to the Black, African-Caribbean community in England, Wales or Northern Ireland please?
Versha Sood
56:16
well said @MaQ.When we work with the communities, with a leader or member together, it helped me build that trust :)
Astrid Stubbs
58:29
what a great idea Tim - can we have one locally :) Morcea you are a legend.. every area needs a Morcea
Louise Bates
58:40
Thank you - much for me to mull over as a volunteer manager! If anyone would like a free Dementia Friends Information Session for their community, please email dementiafriends@alzheimers.org.uk or visit www.dementiafriends.org.uk :)
Bindi Dhesi
59:12
Hi Tim - I delivered a CrISP session to a group of south Asian elderly women some years ago now.
Sue Moorchild
01:01:23
As social prescriber I signpost to advice and support. Many GP practices have this role in place
Lindsey Ambrose
01:02:21
Great point about assumptions by professionals - happened a lot with my dad (from Sri Lanka). It too often felt we had to fight for them to see him as him, not their assumptions about how he/we lived.
Holly Marland
01:04:54
Listening to the lived experience of each individual and co-creating support pathways
Lindsey Ambrose
01:05:13
RESPECT - love it! Humility, compassion - asking rather than telling/assuming :)
Tim Wilkins
01:05:58
Thank you Bindi. My brilliant colleagues recently delivered a South Asian CrISP in West Sussex which was very popular with the community. Following on from this we now have a specific Carers Support Group for the community. However I believe having a CrISP for the Black, African-Caribbean is needed. It will be great to find out if it has been delivered before...
Sue Moorchild
01:07:59
It would be interesting Timto know more about those sessions
Holly Marland
01:09:26
Come as you are carnival
Soraya Latif
01:10:55
Love that idea Holly, I would support that
Lindsey Ambrose
01:11:53
Brilliant point Nigel!
Soraya Latif
01:13:10
Also there are plenty of people who can't be put into one culture as they are mixed heritage and are often even more alienated as they don't fit in either culture
Louise Bates
01:14:46
I love that phrase 'positive curiosity'!
Versha Sood
01:15:21
positive curiosity. Very nice way to put it. Morcea.
Tanya Williams
01:15:49
Morcea rightly said earlier that people are not 'hard to reach', we can just go and talk to anyone. As local services manager I worry that in times of few public resources we are not funded for doing such community outreach any more.
Soraya Latif
01:17:13
Yes, I agree with Nigel when I buy a new calendar, I buy one with different cultural days and | celebrate all of them and put my curiosity to that culture at that time
Tanya Williams
01:21:02
sorry for the late arrival
Lindsey Ambrose
01:23:39
Northants Black History Association provides a wonderful sense of place and community by sharing people's stories - seeing the person and that bigger picture too - for Northamptonshire and sometimes beyond too.
Tanya Williams
01:24:36
What a shame MAQ feels he gave up work too soon after diagnosis. Carers often struggle with giving up work to look after someone, especially people affected by young onset dementia. It perpetuates the gender pay gap as most often females are the lower earners who stop work.
Holly Marland
01:25:36
Positive Curiosity is the take home for me from today’s session. Thank you x
Tanya Kumar
01:26:27
This has been brilliant. Thank you so much.
Astrid Stubbs
01:26:39
thank you so much to all you speakers - fantastic listening and learning from you all -
Lindsey Ambrose
01:26:56
Thank you all for sharing - so interesting - and inspirational!
Valerie Cadmore
01:27:09
Excellent session very informative and inspiring thank you
Louise Bates
01:27:12
Thank you so much for sharing your time, knowledge and insight today!
Debbie Anderson
01:27:44
So very interesting. Thank you so much
Hazel Savage
01:30:04
Fab sessions, enjoyed it very much, thank you
Tanya Williams
01:30:39
So inspiring and refreshing thank you
Holly Marland
01:30:46
Thank you
Helen Rhodes
01:30:51
great session and thank you
Aderonke Olutunmogun
01:30:57
Thank you for an incredible session!
Soraya Latif
01:30:59
Thank you everyone, it was very lively
Kath Pyke
01:31:00
Thank you!! :)
Tanya Williams
01:31:01
thank you
Rebekah Estaugh
01:31:04
Really interesting session, thank you!