3NDWG: Dementia Care & Cultural Sensitivity - Shared screen with speaker view
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is there anyone who would like to join the panel ?
can you see me
Agree! The key to inclusion and diversity is awareness of different cultures :)
Really interesting about the term 'carer'. It's quite loaded for all people for example a transition from 'husband' to 'carer' is hurtful but service use the jargon a lot.
We're very keen to ensure that the Mycarematters profile and the My Future Care Handbook and Buddy Service are valid and relevant to all communities. Will you be providing contact details for Maq and Morcea so we can continue the conversation after today?
Yes Versha, awareness of and genuine excitement and interest and curiousity in different cultures
yes I agree. suddenly your identity and role change.
Question: At Alzheimer's Society, through Dementia Friends we are working with volunteers nationally to educate communities and raise awareness through free information sessions. What do you think is the best way to introduce these sessions to minority communities? How can volunteers most effectively and credibly get their foot in the door?
@MAQ exactly I agree. People associate dementia with more advanced stages, high dependency etc, not the preceding possible years when people can living perfectly well with support before then.
I would Cheryl, but I am full of cold and can't really speak at the moment! Apologies!
yes I agree information needs to be le
yesterday I was almost scamed and lost everthing
more user friendly
In West Sussex a bilingual dementia worker is in the process of being recruited to hopefully start work next April which will be fantastic :)
I have been working with ethnic minorities being part of their community groups and getting to know them. I have had the interpreter for some sessions and was surprised to see the number of people with the diagnosis supported by their families without any formal training. The families came forward discreetly.
That's what happened after the trust was built and people could relate to the information. For me as a dementia friend information session , this was enlightening.
Which language(s) does the dementia worker speak Astrid?
Well done Morcea! I remember you asking for more dementia leaflets for the churches because of that initial interest generated :)
not sure yet - will be an option from a number including Urdu and Gujarati
The Reimagining Dementia Coalition has over 600 members from 26 different countries, all working hard to rewrite the tragedy narrative around dementia. Emphasising quality of life and finding joy. https://www.facebook.com/reimaginingdementia/
Great to meet you all on the panel today and what an enjoyable and informative conversation. Does anyone joining the meeting today know if a specific Alzheimer's Society CrISP course has been delivered to the Black, African-Caribbean community in England, Wales or Northern Ireland please?
well said @MaQ.When we work with the communities, with a leader or member together, it helped me build that trust :)
what a great idea Tim - can we have one locally :) Morcea you are a legend.. every area needs a Morcea
Thank you - much for me to mull over as a volunteer manager! If anyone would like a free Dementia Friends Information Session for their community, please email firstname.lastname@example.org or visit www.dementiafriends.org.uk :)
Hi Tim - I delivered a CrISP session to a group of south Asian elderly women some years ago now.
As social prescriber I signpost to advice and support. Many GP practices have this role in place
Great point about assumptions by professionals - happened a lot with my dad (from Sri Lanka). It too often felt we had to fight for them to see him as him, not their assumptions about how he/we lived.
Listening to the lived experience of each individual and co-creating support pathways
RESPECT - love it! Humility, compassion - asking rather than telling/assuming :)
Thank you Bindi. My brilliant colleagues recently delivered a South Asian CrISP in West Sussex which was very popular with the community. Following on from this we now have a specific Carers Support Group for the community. However I believe having a CrISP for the Black, African-Caribbean is needed. It will be great to find out if it has been delivered before...
It would be interesting Timto know more about those sessions
Come as you are carnival
Love that idea Holly, I would support that
Brilliant point Nigel!
Also there are plenty of people who can't be put into one culture as they are mixed heritage and are often even more alienated as they don't fit in either culture
I love that phrase 'positive curiosity'!
positive curiosity. Very nice way to put it. Morcea.
Morcea rightly said earlier that people are not 'hard to reach', we can just go and talk to anyone. As local services manager I worry that in times of few public resources we are not funded for doing such community outreach any more.
Yes, I agree with Nigel when I buy a new calendar, I buy one with different cultural days and | celebrate all of them and put my curiosity to that culture at that time
sorry for the late arrival
Northants Black History Association provides a wonderful sense of place and community by sharing people's stories - seeing the person and that bigger picture too - for Northamptonshire and sometimes beyond too.
What a shame MAQ feels he gave up work too soon after diagnosis. Carers often struggle with giving up work to look after someone, especially people affected by young onset dementia. It perpetuates the gender pay gap as most often females are the lower earners who stop work.
Positive Curiosity is the take home for me from today’s session. Thank you x
This has been brilliant. Thank you so much.
thank you so much to all you speakers - fantastic listening and learning from you all -
Thank you all for sharing - so interesting - and inspirational!
Excellent session very informative and inspiring thank you
Thank you so much for sharing your time, knowledge and insight today!
So very interesting. Thank you so much
Fab sessions, enjoyed it very much, thank you
So inspiring and refreshing thank you
great session and thank you
Thank you for an incredible session!
Thank you everyone, it was very lively
Thank you!! :)
Really interesting session, thank you!