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People with Dementia’s View on Curing the Care System - Shared screen with speaker view
3NDWG
25:32
hello everyone and Welcome!
Dionne Mant
26:21
Good morning everyone , Dionne from priory court care home Epsom
versha Sood
27:13
Morning everyone
Thomas Rush
29:39
morning. Tom from Belfast. My wife is in a care home with dementia
Dionne Mant
30:09
I agree with Paul, I was once a domiciliary carer and had to leave for that exact reason
Nigel Hullah
32:35
These webinars rely on you. We need your comments, responses, and questions via the text boxes which you will find at the bottom of your screen. Please use the text boxes to ask questions if you raise your hand, we will not be able to see you. The text boxes will be monitored for questions so we will be able to respond to some as we go along.I would like to remind you these webinars are designed produced and presented by people living with dementia.We cannot deal with individual queries, but will try to signpost via the text boxes where individual queries may be dealt with
Sian Blackham
34:19
Good morning. How do you see the role of social care in supporting you to live the life you want to live? What does good care look like for you? Thank you. Sian from Alzheimer's Society
Alison Locke
35:09
Great question Sian
Thomas Rush
38:21
Paul is right about those who care for people with dementia being undervalued. This also applies to staff who look after our relatives in care homes who are also underpaid and undertrained and undervalued. Will the PM ever again mention reforming social care for people needing care?
3NDWG
40:14
Alzheimer's Society are calling on Government to Cure the Care System. You can support this by signing the petition:
3NDWG
40:16
https://action.alzheimers.org.uk/page/80202/petition/1?_ga=2.165290299.506749953.1621333026-1725574531.1604666523
Dionne Mant
40:48
very informative Frances, thank you, you have given me ideas to work with my residents , Dionne
Sian Blackham
45:39
Really important point, Nigel, about involving people in designing the services for them.
Alison Locke
46:45
yes, it has to come down to involving people with dementia, right from the outset - planning and design
3NDWG
47:17
The Dementia Statements:
3NDWG
47:18
https://www.alzheimers.org.uk/about-us/policy-and-influencing/what-we-think/dementia-statements-and-rights
Frances
52:11
thank you for your kind comments. I think it's great you will try art with your patients. I have been doing zoom sessions with care homes and it has been successful. please contact me if you want some further information frances@northfach.co.uk
3NDWG
01:00:01
Deepness Dementia Radio:
3NDWG
01:00:02
https://www.deepnessdementiamedia.com/deepness-dementia-radio
Leanne Hadley
01:00:08
Hello everyone. Thank you for organising a webinar on such an important topic. I’m a PhD student, evaluating paying for care, specifically for people living with dementia in Wales. I would like to ask, from your perspective, do you think the assessment processes a person has to go through to receive home care and/or residential care (e.g. local authority needs assessment/financial assessment, NHS funded nursing care and/or NHS continuing healthcare), needs to be cured? Many reports have called for a social care funding reform but what about the eligibility assessments – are there issues with the assessment? Do they need to change?
Thomas Rush
01:00:50
When my wife was in the early days and had 'MIld Cognitive Impairment' She got good medical care from her GP and the memory doctor. But there was nothing backing that up. No specialist nurses or other professionals. The Social Workers seemed only to be interested in keeping people out of care homes or nursing homes. Thats not a bad objective but they do not have many resources available to make it happen. To be fair to the SWs they also are finding it difficult to deliver anything other than the most basic social care which translate to very underpaid and undertrained staff to provide care in peoples homes and in care homes.
Thomas Rush
01:02:09
leanne
Howard Gordon
01:04:27
Deepness Dementia radio is an Internet Station set up by a person living with DementiaI currently do 5 Programmes"Our Rights" is a weekly programme looking at the United Nations Convention on the Rights of Persons with Disabilities."Musical Memories" is aweekly hour of music I have listened to over the years"Rock Show" is a weekly 2 hour Rock Show in support of "World Rocks Against Dementia 2021""Meet The Professionals" this week interviewing a Consultant Admiral Nurse for Dementia Action Week"Dementia Speaks" next week talking to Kate SwafferOther people living with Dementia do their own programmes including Ronald Amanze who does a Jazz programmeTo listen or check the schedule go to:https://www.deepnessdementiamedia.com/deepness-dementia-radioIf you have Alexa say “Alexa play Deepness Radio”Or get the Soundgarden app on your devices.
versha Sood
01:06:03
That was very insightful Maq
Alison Locke
01:06:34
There's a big need to "actively listen" to people living with dementia at all stages
Thomas Rush
01:06:52
leanne People with dementia should not have to pay for their care and this should be funded in the same way as every other long term health issue . Dementia is a brain disease and is not a social disease. I dont know what a social disease is?
Thomas Rush
01:08:52
Well said Frances
versha Sood
01:08:59
well said Frances
Leanne Hadley
01:10:39
Thank you Thomas. I agree with you.
Adele Leighton
01:12:11
This has been a wonderful webinar. Thank you panel
versha Sood
01:13:48
Real perfect mix of improvement ideas in Dementia Care
Sian Blackham
01:13:49
Thank you so much for sharing your thoughts and experiences. Really insightful, as always.
Derek Dodd
01:14:12
Thanks All - this was really interesting
Sue Clarke
01:14:17
Great insights thank you so much
sam marshall
01:14:23
Thank you all.
Alison Locke
01:14:41
I watched this again earlier today - brilliant!
Thomas Rush
01:14:49
Thank you
Alison Locke
01:15:01
Thanks everyone for a very powerful session today
Michael Skelton
01:15:53
What is the link, please, to share this amazing clip with others?
Dionne Mant
01:16:07
thank you guys , really enjoy
Julie Preston
01:18:01
Thank you all so much for sharing your information. lovely video.
versha Sood
01:18:44
Thank you all the panelists